O Don Miller δήλωσε ο γιατρός της κόρης του την εχει διαγνώσει με αυτην την διαταραχή.
Διαταραχή μετατροπής ορίζεται ως μια νευρολογική διαταραχή που μπορεί να επιφέρει η πίεση το στρεσ με συμπτώματα που περιλαμβάνουν μούδιασμα, παράλυση, και αδυναμία να μιλήσει.
Η New York State Department of Health, λέει από το Σεπτέμβριο, 12 κορίτσια στο Le Roy παρουσίασαν ξαφνικά παρόμοια τικς. Μερικά είναι τόσο άσχημα,που έπρεπε να τα πάρουνε από το σχολείο και να κάνουνε τα μαθήματα απο το σπίτι.
Τετάρτη το βράδυ, ο James Dupont παρευρέθηκα σε μια συνάντηση στο Le Roy Τζούνιορ-Λύκειο ελπίζοντας να βρει κάποιες απαντήσεις για το τι μπορεί να κάνει λάθος με την κόρη του.
Κατά την πρώτη εβδομάδα του Δεκεμβρίου, 17-year-old κόρη του, ανέπτυξε ξαφνικά συμπτώματα τικ.Αλλά δεν είναι η μόνη.
"Ανησυχώ για το μέλλον της κόρης μου», λέει ο Dupont. «Είναι μόνο 17. Δεν μπορεί ακόμη και τώρα να οδηγήσει το αυτοκίνητο ... Η κόρη μου δεν μπορεί να πάει στο σχολείο για ένα μήνα γιατί εχει αυτό το πράγμα."
Η ελπίδα ότι η συνάντηση με το τμήμα Υγείας της Νεας Υορκης, θα του δώσει κάποιες απαντήσεις, αλλά ο ίδιος λέει ότι είναι περισσότερο απογοητευμένος και συγχυσμένος σε σχέση με πριν.
"It's a tearjerker and it hits you in the gut at the same time. You feel frustrated and helpless because you don't know what you can do, and you're not getting any answers."
During the meeting, Gregory Young from the state health department said that all 12 girls had been diagnosed and are being treated. Dupont says that he knows of no such diagnosis.
"Want to know something? If my daughter had a diagnosis and I knew about it, and I would, as her parent, I would tell you that!"
Young told the audience of almost 200 parents and students that the diagnosis and cause of the mysterious illness could not be shared because of the HIPPA Privacy Rule.
"Anytime we deal with a small number of cases and a dozen is a small number in a small community, it's very easy for people to hear the diagnosis and tell people who that diagnosis belong to," says Young.
Dupont believes that the health department doesn't truly know what's going on.
"The girls all go to the same neurologist and there is no diagnosis," Dupont says. "They don't know what's causing it. That's why we're all here at this meeting. It's not getting any better, and they can't share a diagnosis because there is no diagnosis right now."
During the meeting, Young clarified that the cause has nothing to do with illegal drugs, legal drugs, environmental issues at the school or in the Le Roy community, or vaccines. He did say that stress could exacerbate the tics.
"Stressors can make these symptoms worse," Young says. "I'm not saying they're causing it, but I'm saying that it makes it worse."
Young also told the audience that tics are "not uncommon". He says that 4 to 24 percent of children ages 5 through 17 can develop tics, especially children who have Obsessive Compulsive Disorder or Attention Deficit Disorder. However, he did admit seeing it in so many girls and only in girls at the school was strange.
"Tics have a four to one male distribution, so it's much more common in males," he says.
He also stated that an environmental study was done at the high school and they found nothing abnormal.
Hearing about what the causes weren't was very frustrating for parents who wanted answers.
There was a heated exchange during the question and answer portion of the meeting, where an angry parent asked parents of girls with the tics to tell the rest of the parents whether there was a diagnosis or not. All the voices, about a half a dozen, yelled out "No!".
13WHAM spoke to a parent of a girl with the tic symptoms who did not wish to be named. He, too, told us that he did not get a diagnosis from doctors.
"There has to be more to it," says Dupont. "There has to be a cause, a common denominator. I always thought that we could get together with the families of the girls who have this and go through their daily routines and maybe find something that they've all done... Right now, they're giving her shots in the neck or muscle relaxers and that does help, but they're treating the symptoms not the cause."
Several concerned parents said that they left Wednesday night's meeting more nervous than they were before. They felt they weren't given enough answers.
Others said that they understood why too much information couldn't be divulged and wondered if the parents of the affected students knew the diagnosis but didn't want to accept it.
For now, the New York State Health Department says they are continuing to treat the girls and are monitoring for any new cases.
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During the meeting, Gregory Young from the state health department said that all 12 girls had been diagnosed and are being treated. Dupont says that he knows of no such diagnosis.
"Want to know something? If my daughter had a diagnosis and I knew about it, and I would, as her parent, I would tell you that!"
Young told the audience of almost 200 parents and students that the diagnosis and cause of the mysterious illness could not be shared because of the HIPPA Privacy Rule.
"Anytime we deal with a small number of cases and a dozen is a small number in a small community, it's very easy for people to hear the diagnosis and tell people who that diagnosis belong to," says Young.
Dupont believes that the health department doesn't truly know what's going on.
"The girls all go to the same neurologist and there is no diagnosis," Dupont says. "They don't know what's causing it. That's why we're all here at this meeting. It's not getting any better, and they can't share a diagnosis because there is no diagnosis right now."
During the meeting, Young clarified that the cause has nothing to do with illegal drugs, legal drugs, environmental issues at the school or in the Le Roy community, or vaccines. He did say that stress could exacerbate the tics.
"Stressors can make these symptoms worse," Young says. "I'm not saying they're causing it, but I'm saying that it makes it worse."
Young also told the audience that tics are "not uncommon". He says that 4 to 24 percent of children ages 5 through 17 can develop tics, especially children who have Obsessive Compulsive Disorder or Attention Deficit Disorder. However, he did admit seeing it in so many girls and only in girls at the school was strange.
"Tics have a four to one male distribution, so it's much more common in males," he says.
He also stated that an environmental study was done at the high school and they found nothing abnormal.
Hearing about what the causes weren't was very frustrating for parents who wanted answers.
There was a heated exchange during the question and answer portion of the meeting, where an angry parent asked parents of girls with the tics to tell the rest of the parents whether there was a diagnosis or not. All the voices, about a half a dozen, yelled out "No!".
13WHAM spoke to a parent of a girl with the tic symptoms who did not wish to be named. He, too, told us that he did not get a diagnosis from doctors.
"There has to be more to it," says Dupont. "There has to be a cause, a common denominator. I always thought that we could get together with the families of the girls who have this and go through their daily routines and maybe find something that they've all done... Right now, they're giving her shots in the neck or muscle relaxers and that does help, but they're treating the symptoms not the cause."
Several concerned parents said that they left Wednesday night's meeting more nervous than they were before. They felt they weren't given enough answers.
Others said that they understood why too much information couldn't be divulged and wondered if the parents of the affected students knew the diagnosis but didn't want to accept it.
For now, the New York State Health Department says they are continuing to treat the girls and are monitoring for any new cases.
ADG Facebook: http://www.facebook.com/pages/Alien-Disclosure-Group/189249627773146
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